The Hexi: Burn Injuries (formally known as Burns Healthtalk) webpage on burn injuries offers a detailed look at the experiences of people affected by scalds or burns.
It features personal stories from 36 individuals across the UK, including adults, young people, and parents of children with burn injuries.
These interviews provide valuable insights into the emotional and physical challenges faced by burn survivors.
The site shares these real-life experiences through video, audio, and text formats.
While the webpage is primarily designed for those who have had a burn injury, their parents, and carers, it is also a useful resource for healthcare professionals, and anyone interested in learning more about the experiences of burn survivors.
“It’s great to hear others who have been through burns express how they are dealing with it in everyday life, explaining their managing skills with it and talking about the emotional impact, mentally coping with living with burns, and getting their head around the surgery.”
Adult with burn
“It is one of its kind, a valuable resource, seeking out the truth behind realities of living with a burn injury, accessible at any time of day or night, can be accessed as needed, short snippets of information, great layout by topic and place in care pathway. Excellent resources for clinicians, patients and families and carers of those affected by burns.”
Nurse
Podcast
You can hear more about this resource on this episode of the Appearance Matters podcast.
The Research
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The Hexi: Burn Injuries webpage is based on interviews with 36 people who had experienced burn injuries. Those interviewed focussed on their personal stories and the emotional and social impact of their injuries. The webpage was later evaluated by 39 users, who found it to be informative and relatable, and said they would recommend it to others.
The research was conducted by PhD student Christia Huntington, with supervision from Professor Diana Harcourt, Dr Pippa Tollow, Dr Toity Deave and Dr Catrin Griffiths. This was in collaboration with the Medical Sociology and Health Experiences Research Group at the University of Oxford.
This resource was developed in collaboration with the Medical Sociology and Health Experiences Research Group at the University of Oxford.
Acknowledgements
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We would like to thank the people who shared their experiences and participated in the interviews that informed the Burns Healthtalk module (now known as Hexi). We are also grateful to the study advisory panel members, healthcare professionals within burns care, and charities.
Advisory Panel
Abi McNiven – Senior Researcher, Health Experiences Research Group, Nuffield Department of Primary Care Health Sciences, University of Oxford
Sinead Soffe – Parent advisor
Helen Merrin – Adult advisor
Laura Shepherd – Consultant clinical psychologist in burns/cleft lip & palate services
Sylvia Mac – Adult advisor
Krissie Stiles – Burns and Plastic Surgery Clinical Nurse Specialist/Client Liaison Manager, Leigh Day
Justyn Hollet – Adult advisor
Hemani Modasia– Adult advisor
Polly Brookes – Adult advisor, founder of the charity Dan’s Fund For Burns
Jonathan Mathers – Senior Lecturer, Institute of Applied Health Research, University of Birmingham
Sue Ziebland – Professor of Medical Sociology and Co-Director of MS&HERG, University of Oxford
Ruth Sanders – Research Delivery Project Manager, MS&HERG, University of Oxford
Funders
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This project was funded by the VTCT Foundation and the University of the West of England, Bristol, through a Partnership PhD.
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