We hope the resources on this website will be helpful to you, but they might not address all your needs, and we can’t provide direct support to individuals. The organisations below may be able to help you. We also suggest you contact your GP or other health professionals if you have concerns or questions.
Adult Burn Support UK
A website funded by Dan’s Fund for Burns that signposts users to the most helpful resources and information on the aftercare/support available to burn-injured adults in the UK.
Allergy UK
Information for people with all types of allergies, including skin allergies.
Alopecia UK
Help, support and advice for people with alopecia and all hair loss conditions.
Behcet’s Syndrome Society
Represents and supports people with Behçet’s disease and their carers.
Bell’s Palsy Association
Help and information for people with Bell’s Palsy.
Birthmark Support Group
A support group for people with birthmarks.
Blesma
Support for serving and ex-Service men and women who have suffered life-changing limb loss or the use of a limb, an eye or loss of sight.
Breast Cancer Now
Support, information and advice for those with or recovering from breast cancer.
British Acoustic Neuroma Association (BANA)
Information, advice and local support groups for people with acoustic neuroma.
British Association of Dermatologists
Fact sheets on general dermatological conditions.
Caring Matters Now
Information and support for those affected by Congenital Melanocytic Naevi (CMN).
Changing Faces
A UK charity that supports and represents everyone with a scar, mark or condition on their face or body.
Childhood Eye Cancer Trust
Support for people affected by retinoblastoma.
Children’s Burns Trust (CBT)
Provides information and support for burned and scald-injured children and their families as well as prevention and awareness campaigns.
Childhood Tumour Trust
A munificence for children, young people and their families affected by Neurofibromatosis Type 1 (NF1).
Cleft Lip and Palate Association (CLAPA)
Provides information, advice and practical support to people with and affected by cleft lip and/or palate in the UK.
Dan’s Fund for Burns
Offering practical help to adult burn survivors in the UK
DEBRA UK
A patient support organisation for people living with epidermolysis bullosa (EB).
DSD Families
An information and peer support charity for families of children diagnosed with differences of, or diverse, sex development (DSD).
Eczema Outreach Support
Helping children and young people with eczema thrive.
ED Society – Ectodermal Dysplasia
A charity dedicated to improving the health and well-being of people whose lives are affected by ectodermal dysplasia and supporting individuals, families and professionals worldwide.
Ehlers-Danlos Support UK
Provides information, support and advice for people wth Ehlers-Danlos syndrome.
Facial Palsy UK
Support for people living with facial paralysis.
Goldenhar UK
Information and support services for families who have children with Goldenhar Syndrome.
Headlines Craniofacial Support
Support and advice for people with any form of craniofacial condition or syndrome.
Herpes Viruses Association (SPHERE) and Shingles Support Society
Treatment information and self-help tips for those suffering from shingles, cold sores and herpes-related viruses.
Ichthyosis Support Group
Promotes the welfare of children and adults affected by ichthyosis.
Katie Piper Foundation
Advice, information and support for people with burns and scars.
Limbless Association
Provides information, advice and support for those with amputations. Also provides access to local user groups.
Lipoedema UK
Support and information for people with, or seeking, a diagnosis of lipoedema.
Lipodystrophy UK
Dedicated to supporting people affected by Lipodystrophy in the UK.
Little People UK
Offering friendship, support and advice to all little people in the UK.
Lupus UK
Advice, help and support to people affected by lupus.
Macmillan Cancer Support
Provides practical, medical and financial support for those affected by cancer.
Microtia UK
Support for children, families and adults affected by Microtia.
Microphthalmia, Anophthalmia and Coloboma Support (MACS)
Supporting children and adults born without eyes or with underdeveloped eyes.
National Ankylosing Spondylitis (AS) Society
Provides information, advice and a forum for those with AS.
National Eczema Society
Support and advice to people with eczema.
Nerve Tumours UK
Support, advice and help for people affected by neurofibromatosis.
Psoriasis Association
Offers advice, help and support to people with psoriasis and psoriatic arthritis.
Psoriasis and Psoriatic Arthritis Alliance (PAPAA)
Dedicated to helping people affected by psoriasis and psoriatic arthritis.
REACH
Helping families and young people with upper limb difference connect, learn, and support each other, from birth through to adulthood.
Royal National Institute of Blind People
Practical and emotional support to blind and partially sighted people, their families and carers.
Scleroderma & Raynaud’s UK
Information and support to people affected by Raynaud’s or scleroderma.
Skin Care Cymru
Patient support group for those with any skin condition in Wales.
Sturge Weber UK
Information and support group for families and adults affected by Sturge Weber syndrome.
Talk Acne
Offers support, advice and information to those affected by acne or rosacea.
Ted CT
Aims to improve the lives of those with thyroid eye disease by developing a supportive community of patients and professionals.
Teenage Cancer Trust
Aims to support young people and their families affected by cancer.
The Arthrogryposis Group
Offers support and advice to those with arthrogryposis.
The Lymphoedema Support Network
Provides information and support to patients with lymphoedema.
The Pituitary Foundation
Support, information and networks for anyone affected by pituitary conditions.
Treacher Collins Family Support Group
Offers support and friendship to Treacher Collins families and individuals.
Versus Arthritis
Provides support and information for people with all forms of arthritis and their families.
Vitiligo Support UK
Information, help and support for people with vitiligo.
Vulval Pain Society
Information and support about lichen sclerosis.
We Get It
A charity based in Bath, offering support for people living with cancer and beyond.
The Youth Cancer Trust
Provides free therapeutic well-being holidays and secure online support for teenagers and young adults (aged 14 to 30) living with and beyond cancer.
Young Lives vs. Cancer
Supporting young people affected by cancer.