SupportingChildrenWithBurns.co.uk is a helpful website for parents and carers of children and young people who have experienced burn injuries, regardless of the size, severity or location.
It offers practical advice and tips to help manage common challenges faced by parents and carers of children and young people who have had a burn. You’ll also find personal stories from other parents and links to useful resources.
The site can also be a valuable tool for other family members, like grandparents, who want to offer their support.
“…having one place to go when looking for support will help parents and burn victims to let them see they aren’t alone, help is out there.”
Parent
“A very informative website. A useful tool for getting support and reassurance.”
Grandparent
“Really valuable resource. The patient stories and videos will be very useful for me in delivering training for wider MDT colleagues. I will definitely be recommending this website to families and professionals alike.”
Clinical Psychologist
Podcast
You can hear more about this resource in this episode of the Appearance Matters podcast.
The Research
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This website was developed based on two key research studies. The first involved interviews with 13 parents of children with burns about their experiences, support needs and access to support. The findings from these interviews were then used to develop a survey, which was completed by 57 parents of children with burns. These studies suggested that many parents had searched the internet for information about burns after their child was injured but couldn’t find enough helpful resources. Using the findings from both research studies together, the website SupportingChildrenWithBurns.co.uk was created.
The website itself was developed with input from nine parents and 22 professionals and tested before being made available to everyone. The website’s performance was evaluated over the first six months after its launch.
The Supporting Children with Burns website was developed by Dr Jennifer Heath as part of her PhD at the Centre for Appearance Research (CAR). Her PhD was supervised by Professor Diana Harcourt and Dr Heidi Williamson (CAR), and Dr Lisa Williams (Chelsea and Westminster Hospital Burns Unit). Many organisations helped with this research, including Children’s Burns Trust, the British Burns Association, Changing Faces, the Association for Child and Adolescent Mental Health, and the Katie Piper Foundation.
We thank all the parents and carers who helped us develop and evaluate the Supporting Children with Burns website. We are particularly grateful to the Children’s Burns Trust and NHS burn care teams across the UK.
UWE Bristol funded the PhD research that informed the development of the Supporting Children with Burns website.
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